Forgive me yet again for not keeping up to date on my posts. I'm going to refer to my fabulous sis-in-law - Michele's blog (Five Men, Three Ladies and A Cat) for a catch up on our Bear Lake activities... I will still post hopefully tomorrow with more on that and life in general but for today, my heavy heart is going to use this post to journal out our latest Marci update.
As most know, Marci and I have been seeing many therapists (OT, Speech, etc.) and also have gone through 5 evaluations on sweet Ms. M. After requesting tests on her for Autism and finally getting the 1st back out of several... my suspicions have been right. My beautiful girl is Autistic. The first therapist to return our first "A" test today was great to explain the complexity though. Marci was tested at 2 years old for a test that goes for 2-10 year olds. It does not allow for conversation on the brightness and genius of Marci. She said (and other therapists agree) that with all of the work we are doing now and Marci's incredible mind - she will outgrow most of this phase. What 2 year old counts in 5 languages, can sound out words in books, memorizes movies and books and has an amazing memory?
It has been a tough journey so far and we have many more miles to go. I'm told that by the time Marci is 5, if we continue to work like we are, she will be able to relate in social environments so that is our goal. I have never cried so much as I have the last 2 months for my sweet girl. She is amazing though and we will overcome this. I'm so grateful for the gift of her, for her beauty, her laughter, her amazing mind and for her ability to love so deeply and melt this mom's heart. Thank you God for Marci. I'm going to start a loving list (thanks to Jenna on this idea!) and will post on her progress. I'm so grateful to all some dear friends who have gone down this road and are so willing to share their advice, stories and their shoulder. I have been a terrible friend and have not being keeping up to date with everyone and for that I apologize. I will try to do better and will promise to update this blog several times a month if not more. Keep my sweet girl in your thoughts and keep looking to this post for some fun stories... I promise...
Today Marci's loving list - watching her sing over 40 of her favorite nursery rhymes at the desolate play park and shaking, dancing and 'beating' to the beat. Also for giving me hugs every 10 minutes (I think for taking her to a desolate play park!)
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3 comments:
I remember the time we had Cade tested for autism and he stayed in the room and played catch with the psychiatrist and all sorts of other things. When he was done he said Cade was way too social to be autistic but that with his severe disability he was surprised at how high his self-esteem was and he gave the credit to whatever we were doing with him at home. Keep up the hard work because it is all worth it, no matter how slow the process seems. She WILL make leaps and bounds because of your love for her!!!! And because of your faith in God! We love all of you!!
Susan, I know you are going through a tough time right now and my heart aches that I cannot be there with you. I have always considered Marci to be the miracle baby. God gave her to you for a reason, he knew that you would provide her the best possible care, comfort and nurturing of anyone. I know that you have and will continue to research and explore all options and the most current therapies available. You are very lucky to have each other and because of your love and care Marci will grow into an amazing young lady. Keep up the good work, you are wonderful! Love, Deb
My mom knows about me a lot.It is true that I have done those things in my younger age.Well I say that is amazing that she can memorize from movies that she knows and songs that she loves. For me I had to practice memorizing words from the script in the play to stay in character.She is a talented girl you got for the age she is, but she still amazing how she got so good.love you from your nephew.
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